Not long after talking to Dr. Frakin's office, I received a call from Courtney at Dr. Reznick's office. Since there were a few things that needed to happen for me to start treatment on Monday, she called to tell me the other appointments I have scheduled for Friday (as she knew Thursday afternoon would be a little tough). So, here is the schedule for Friday:
- 9am: Reznick's office in Parker for "teaching". This is the informational meeting with the financial counselor and nurses to hear what to expect.
- 10:45am: Audiogram in Parker: Hearing test to provide a baseline for Dr's. One of the drugs has a potential side affect of buzzing in the ears. I already have that as I am living in a house with 3 women.
- 1:45pm - Pulmonary function test at the Medical center of Aurora - Test lung volumes and bronchial tree functionality.
- 3:30pm - MRI at Medical Center of Aurora - MRI of spine.
As you can see, Thursday and Friday are full of required appointments to keep Monday's start date.
The only other info from Tuesday afternoon's appointment that I wanted to share is the chemo schedule. It revolves on a 21 day cycle from the first day of treatment (always a Monday) and is broken down as follows:
- Days 1-5: I am at Rocky Mountain Cancer Center for Chemo. This is a 5 hour appointment where I receive Etoposide and Cisplatin each day and Bleomycin on Tuesday.
- Day 8: I stop into the office for medication to help with side affects. Some of the medication discussed was neulaste and arunesp. Depending on how I feel, there are many other medications available to help ease things.
- Day 9: Tuesday - Stop into the office to receive a shot of Bleomycin.
- Day 16: Tuesday - Stop into the office to receive a shot of Bleomycin.
That is what each 21 day cycle looks like in terms of scheduled office visits to receive medicine. I will have 4 cycles of BEP and that means the following 4 dates are the first day of treatment:
- November 5th
- November 26th
- December 17th
- January 7th
Although I was hoping for this thing to get going as soon as possible, I didn't sleep very well on Tuesday night as I had a lot of "what if" questions. Not so much about the treatment or how I will feel but more about Jen and the girls, the holidays, work, the cost of this stuff and everything else you can imagine, some being more serious than others. I did run into our neighbor last night (we took Addison trick or treating to the immediate neighbors houses - Briley went to a party with some friends) and I told him what was going on and asked that, if we get a significant snow, he use his snow blower on our driveway so Jen does not have to deal with it. Last year, on the December dates I am schedule for Chemo, we had a huge snow storm and I shoveled for hours. He was extremely kind and offered what ever we need and I would not have expected anything less from him. The toughest part is asking and I am really clear that, during this time, I will need to ask for help. That feels so counter intuitive as you grow up hoping to prove your independence and show how self sufficient you can be and then all of the sudden, you are asking someone to shovel your driveway because you can't. I'd guess there will be many other instances like this and the great thing is that we have the support of so many people. I can't stress how much I appreciate all the emails, calls and letters we have received and it's overwhelming when people say something similar to "just let me know what you will need and I will take care of it" as I know the people who offer this, are serious and would help with anything. This would be an easy point for me to insert a joke about needing new tires or the Ultimate James Bond dvd collection or something similar and I don't want to take away from what I am saying and that is Thank you.
I also see a shift in the blog as I have been very matter of fact and tried to pass along as much as I could with as much detail as possible. I think the next 12 weeks have the possibility of being very abstract and I have decided that I will use the blog as a journal and will be very honest and straightforward with my comments. This might give some of you more info on me than you would ever want to know and it has the potential to be pretty ugly and that is my warning to you. I will do my best, depending on how I feel, to write daily and share what is going on with the chemo. Thank you again for taking time out of your day to read this.
I do want to acknowledge that both our bosses and companies are giving us unconditional support and that provides a great sense of relief. I promise to work really hard when i get back.... well, I will work when I get back..... or, maybe I will just sit in the office and stare at the mountains.
Sam
3 comments:
Sam,
This road for the moment might be tough but the prize is a healthy body, a healthy you and a long life with your family and friends ~ at the end of the day that is All that matters. I love you!
Heather
Sam,
I can't begin to tell you how proud I am of you, as my Son and of the man you have grown to be. I love your light and funny side and when your answers are so much like Uncle Fred's it takes me minutes to recover from the surprise. I think its a Krieger trait that you could only have inherited from my side of the family. Sometimes something you say sounds like my father when he would kid with us. You keep me off guard with your smart ass way & there is almost always a laugh that follows.
Your honesty and integrity, your ability to express just how much you love your family (all 4 girls including Maisy) overwhelms me with happiness. They are very lucky to have you and "Your Girls" have the top of the line.
I was scared of the cancer but more for what you would have to go through to get rid of it. I know it will not be easy and that there will be some good and some bad days. But for me because you can share how you fell it will make it easier as I will KNOW what is going on mand how you are.
For the long haul, we are here with you every minute. I know you know this and understand what it means to all of us. Althogh you are the one that will have to fight & win the battle, we will be here fighting with you every day and any way we can.
Moving here has not been very easy and many time (although not the times I have my girls with me) we have wondered what the hell we are doing here. Now we know. It was meant to be.
We love you Sammy. We love all the girls and we are here forever. Please ask us for help anytime.
I too started a journal about this time. Mine will include loving thoughts from my friends and family that have been sent to me, feelings that I have written down, when I could not speak any word, times when I could hardly breath from fear. We can share them someday, and smile.
I love you with all my heart.
Mom
Dear Sam, Jennifer and Girls:
We send our good wishes for an easy therapy procedure for you illness. some days will be tough and others will be very good. The end result is what matters. Sam, you have a very wonderful, healthy attitude about what is happening in your life. You will be well in a short time. With our love for a "refuah" (recovery). Eileen and David Naiman (Young American's Bank
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