When Jen and I went in for Chemo "teaching", they defined Chemotherapy as the treatment of cancer with drugs. At this moment, the term drugs is a little vague and I would like to reclassify it as poisons. I seen my fair share of drugs and they have never left me feeling or breathing or thinking like I am right now. These are poisons that are current destroying the good and bad cells in my body and it is a struggle. The past weekend was really tough as it was the first touch of this heavy sick feeling and these new feelings are awful. When it's quiet and I am not moving, my pulse is going so fast that it feels like it could knock me over. When it's quiet, there is a ringing in my ears and when I take a breath, all I want is for my body to quench the air and feel some relief but it's not there. It burns, it's heavy and it gets in the way of everything else. I know that I said I would pass along my thoughts and, if it was possible for me to regurgitate them all (unedited) onto these pages, the would be published and put on the shelf next to Steven King or the guy who wrote the Saw movies. The thoughts are disgusting and I try to tell myself that they are not mine, as I typically do not think of death, horror and blood, but they are and they are fed by the poisons. If I told you the nightmares I was having, I am not sure you could look at me the same. I don't think you would question if it was me or the poison talking but you would remember what I said as I do not want that burden. Most of the weekend, I just didn't have the energy to post to the blog. I realize that I've asked many of you to check here for updates as it's the most efficient way to pass information and I will do my best to post daily.
I expected to go to work today as I had a "decent" night's sleep. I had my first shot of Neulasta around 10am this morning and I am eagerly awaiting it to kick in. What the nurse told me is that my bones will start to hurt and that is a good thing as they are pushing out more white blood cells. As previously mentioned, the treatment kills everything that is regenerating including the good stuff so I'm extremely susceptible to getting sick and this shot helps stimulate the white blood cells. During the 2nd week of treatment, when the white count is low, they are very concerned if your temp gets to 100.5 and want to know immediately if that happens. This morning, I was at 99.1 and I chose to come home and rest. I will tell you that the Neulasta shot was 6ml and it cost $7000. Now, I totally understand that Amgen (Sorry Elaine) should get paid for their discovery and research and one day the market will be flooded with imitations, I just wish that was today as that is a very expensive Shot and I am scheduled for 3 more over the next 11 weeks.
I did have the garage door fixed last Thursday for a grand total of $560.88. As you can imagine, with the holidays, medical bills, etc, this was not the best use of money and I am still really pissed about it. We need to get it painted soon before the HOA fines us.....
So, my deal today is that I will pass on as much as I can because some of it is not appropriate and to write it down, is reliving it which is worse.
6 comments:
Sam,
I am sorry that this is getting so tough so quickly.I must say that I remember many similar talks with Marc where he said similar statements about smells worrying that others could smell what he did, about the poisons in his body and about the burning.If there were a way for me to take it away, I would in a moment. I do not believe that you are a Melissa Ethridge fan but she wrote a song about her chemo treatment and how horrifyingly difficult it was for her. The song is off her "Road Less Traveled" CD and is titled "This is not goodbye". It just talkes about how deep a place she had to go to cope and function when these drugs are flowing through your body. I hope that you can find that place deep within to get you through this time. I love you.
Heather
Sam,
It hurts that there is so little we can do to help. We know its your fight and struggle and every day I look for a way to make you more comfortable, take some of the stress off Jennifer, what ever. None of it feels significant enough. I love you. Mom
Steve wants to paint the garage door, and he can, just give the RIGHT color and let me check it twice. He once painted our bathroom Pepto Bismol Pink!!
Just a note, I looked at the CD again this morning and remembered that the final trac on the CD is titled "I run for life" which is expressly about surviving breast cancer and is an amazing song. It is about coming out on the other side healthy and cancer free. 73 days to go!
Much love,
Heather
Hi Sam,
It's Elaine. How are you today? I'm hoping you feel a bit better. Do me a favor and let me know how much out of pocket you have to pay for the neulasta? You can email me directly at elanopotato@sbcglobal.net....I can't guarantee anything but I'm going to a least look into whether I can do anything about the cost to you. I know we have help for direct family members but beyond that I'll have to research.
Hang in there Sam.
Love,
Elaine
Dear Sam: this is the hard part, the rest will be easy and you will feel better once again. Keep that chin up and a smile in your heart and on your face. We are all hoping that the coming days will become easier and not have you in pain. With love, always, Eileen and David (YAB)
Sam,
Such horrible, hard days you are enduring. Heather's words seem very wise..go to that deep place within...I hope and pray you will find some relief in any way that you can. TODAY
Now...re. the garage door: Let the girls paint it! Flowers, clouds, birdies, smiley faces! Think the Home Owners Assoc. would go for it?
I love you,
Mary
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